Friday, September 4, 2026

The Last Chemo Appointment!

Last trip to the BCC!

I'm sorry I didn't get this ceremonial done-with-chemo post up yesterday. I've felt just horrible. After another long nap this morning, I'm beginning to feel better. 

John and I talked in the waiting room about how this didn't feel... climactic or final. I'm thinking we may have to create a purposeful time to experience that. We have been taking it one-day-at-a-time for so long, planning nothing, that we will have to consciously make the shift to looking ahead more than 24-hours. 

John still has 3-4 weeks of chemo side affects ahead of him. After that we don't know what it will be like. I believe he has blood work in 5-weeks to see how well he's bouncing back. I will be very happy to give those updates.

Wednesday, September 2, 2026

Loooong Day

Outside me
Inside me








There are signs in the Duke buildings saying “Aggressive behavior will not be tolerated.” I was about to test how aggressive. 

We got here at 7:00. 

John had blood drawn at 7:40. 

We saw the doctor at 8:15. 

We should have been on the list ready for treatment at 8:30. 

They finally called us back at 11:15!

Thankfully John gets to sleep the entire time but our day is 50% longer than it should be. 

Jinx!

We’ve been waiting for 2 hours to get into treatment. Usually doesn’t take more than 1 hour. I checked at the front desk and they did t even have us in the queue! 

It’s been 2.5 hours and they are about to get the Robertson woman from me.

LAST TREATMENT - #6


Very early morning. Our appt is for 7:30. We should also see the doctor today to get follow up info. 

Expecting an uneventful day. 

Friday, August 21, 2026

Another New Room and an Update

Sorry for the late update. I’m more rested today but you know how grueling it can be when someone is in the hospital. John and I both just want our routine back. 

TL;DR
  • Everything is looking great.
  • John got moved to a fancy room in the transplant/cancer ward.
  • He may be discharged tomorrow late. 

Wed, Aug 19, 2:00 p.m.


This is when the first blood cultures were taken at the cancer clinic. 

These blood samples were taken in special bottles that foster the growth of any germs or bacteria in the blood so they can be easily detected. The cultures are checked once every 24-hours. After 5 days, if no germs or bacteria are detected then we know there’s no infection. 

This is why it’s taking so long to release him from the hospital. If they release him too early and there’s an infection, it will take hold again and we’ll have to start this whole process over. 

4:30 (approximately) we move to the ER
7:30 He is triaged
8:30 He is moved to an ER overflow room


Thu, Aug 20


8:00 a.m. moved to another ER overflow room
11:30 a.m. John sees attending doctors

This is the first time John saw the attending doctors, Patel and Chobal. It had not even been 24-hours since the cultures were drawn.
 
Although his symptoms had improved and blood clots were ruled out, the blood cultures need a good 48-hours to really rule out infection.

They also said his neutrophil count was 0, as in he had no white bloods cells specifically for fighting infection! The desired range is 500 - 1800. So, he would be given meds to stimulate these white bloods cells, continue antibiotics, and wait for the cultures. 

5:00 p.m. He’s moved to an ER hospital room. Still on the list to get moved to the cancer ward.


Fri, Aug 21, 11:30 a.m.


Drs. Patel and Chobal said John’s neutrophils were up to 180. Given all of his overall improvements they felt very good that the cultures would come back negative for infection and he was just suffering from severe dehydration. 

They gave John the choice of staying on antibiotics one more day (the hyper-safe route) or stopping all antibiotics now so he could be discharged tomorrow after the 48-hour culture results came in. Of course, John wants to go home. They will continue to monitor the culture for 5-days and be ready to immediately readmit him if he develops symptoms at home or the culture turns positive. 

2:00 p.m. I leave the hospital
5:30 p.m. He’s moved to the transplant/cancer ward. 

John actually did a FaceTime call with me so he could show me his new room. It’s huge, he gets to order what he wants for meals and he has streaming services on the TV. There’s even a couch that would have been great to sleep on two days ago. 



Friday Morning

View from his window (room 4307)

7:00 a.m.

John was sleeping when I arrived. His BP was 122/78. He feels good enough to just want to go home. 

He ate all his breakfast, took a shower, and walked down the hall. 

You’re welcome to call and cheer him up. He’s bored and we’re just in a holding pattern. 


Thursday, August 20, 2026

Room 4307


John finally got a room around 5:00 p.m. He said it was still in the ER. I don’t know what that means yet. 

I left the hospital around 12:30/1:00. I was exhausted and had a massive headache. Knowing that we had all the info we were going to get today and it’s just a waiting game now, we thought it best if I got some rest. I’ll feel so much better tomorrow and can spend more of the day with him. 

The Last Chemo Appointment!

Last trip to the BCC! I'm sorry I didn't get this ceremonial done-with-chemo post up yesterday. I've felt just horrible. After a...